Patients on committees, boards and project groups
Patients, and patient representatives, are pivotal to our projects and workstreams. We support a number of individuals to play a key part in our work.
Below you can find a selection of examples, where patients are involved and influence our work:
- Review of the CCG's complaints policy and information leaflet - Strategice Patient Partners Bernie Aucott and John O'Donnell
- Minor eye conditions and community ophthalmology working group – Mark Sanders
- Universal Patient Offer scrutiny group – Bernie Aucott and Anne Devrell
- Clinical Priorities Advisory Group – Healthwatch Solihull and Bernie Aucott
- Personal Health Budgets – members of the People’s Health Panel
- The Standard GP Dataset – in collaboration with NHS digital, we have worked with a range of patients to test out their understanding of materials and terminology
- NHS Diabetes Prevention Programme – The focus of this programme is to identify pre-diabetic patients and encourage them to attend free diabetes education programmes; these encourage a healthy lifestyle and diet aimed at preventing diabetes – Tony Kelly
- Structured Education Delivery Group – one of three workstreams of the Diabetes Transformation Programme. This programme aims to help diagnosed diabetics to self-manage the condition well by supporting them with diet and lifestyle advice – Tony Kelly.
Below is a short video providing an example of how patients are involved and influence our work:
Mental health co-production steering group
The co-production steering group consists of 15 members who convey information from local seldom heard groups, up to key decision makers.
The individuals involved are currently using, have used or are caring for someone who is using mental health services in Birmingham and Solihull.
We have encouraged members of the steering group to sit on a number of the decision making working groups. To date there is user involvement in the Mental Health Programme Delivery Board, Urgent Care Task and Finish Group and Primary Care Task and Finish Group, where their role is to challenge professionals and to make sure that decisions are service user focused. The co-production steering group meet on a monthly basis and are now supported by workers from the MIND Community Development Workers Service (CDW), whose role is not only to offer support and facilitate meetings, but also to disseminate information to hard to reach community groups.
Below is a short video showing how the group influenced and helped shape a local engagement exercise:
All steering group members have been offered training to ensure that they understand their roles, the commissioning process as well as gaining an understanding of how the whole mental health system interlinks.
The group is keen to develop links with other service user groups and has met with the Recovery for All group at Birmingham and Solihull Mental Health Foundation Trust to establish if there is any possibility of carrying out joint work.
What have people been involved in so far?
- Crisis Cafés – including developing reports, meeting with organisers and carrying out site visits
- Supporting the progression of neurodevelopment pathways
- Supporting the design of ‘early help’ offer
- Improving access to psychological therapies (IAPT) service specification
- Supporting primary care liaison feedback
- Being part of governance and decision making process e.g. involvement in mental health governance, programme delivery board, urgent care and primary care task and finish groups
- Presenting to the Mental Health System Strategy Board.
What are the opportunities for people to get involved?
- At present involvement in mental health co-production is through the steering group and through the projects disseminated from the group to communities, through the community development workers
- We will also be looking at mechanisms to increase involvement opportunities for the future.