Transforming care for people with learning disabilities is a national programme to improve services for people with learning disabilities and/or autism, who display behaviour that challenges, including those with a mental health condition. This will drive system-wide change and enable more people to live in the community, with the right support, and close to home.
Led jointly by NHS England, the Association of Adult Social Services (ADASS), the Care Quality Commission (CQC), Local Government Association (LGA), Health Education England (HEE) and the Department of Health (DH), the Transforming Care programme focuses on the five key areas of:
- Empowering individuals
- Right care, right place
The national plan, Building the Right Support, that has been developed jointly by NHS England, the LGA and ADASS, is the next key milestone in the cross-system Transforming Care programme, and includes 48 Transforming Care Partnerships across England to re-shape local services, to meet individual’s needs. This is supported by a new Service Model for commissioners across health and care that defines what good services should look like.
The plan builds on other transforming care work to strengthen individuals’ rights; roll out care and treatment reviews across England, to reduce unnecessary hospital admissions and lengthy hospital stays; and test a new competency framework for staff, to ensure we have the right skills in the right place.
The Transforming Care programme is focusing on addressing long-standing issues to ensure sustainable change that will see:
- More choice for people and their families, and more say in their care
- Providing more care in the community, with personalised support provided by multi-disciplinary health and care teams
- More innovative services to give people a range of care options, with personal budgets, so that care meets individuals’ needs
- Providing early more intensive support for those who need it, so that people can stay in the community, close to home
- But for those that do need in-patient care, ensuring it is only for as long as they need it.
More information on Transforming Care is available below:
- Building the right support leaflet
- Building the right support plan
- Transforming Care Plan - easy read
- Transforming Care Board terms of reference - easy read
- Birmingham Transformation Plan
Care and Treatment Reviews
Care and Treatment Reviews (CTR) have been developed as part of NHS England’s commitment to transforming the services for people with learning disabilities and/or autism who display behaviour that challenges, including those with a mental health condition.
The CTR ensures that individuals get the right care, in the right place that meets their needs, and they are involved in any decisions about their care.
The policy for Care and Treatment Reviews, also called CTRs, changed in March 2017. View the latest policy.
In order to promote awareness of Transforming Care and to support best practice within CTR, we have produced a document that contains useful links and resources for professionals, patients and families. View the Transforming Care and Care Treatment Reviews document and the Modified 12 step discharge checklist.
To find out more visit the NHS England website.
Learning Disability Mortality Review Programme
CCGs in Birmingham are part of the national Learning Disability Mortality Review Programme (LeDeR), commissioned by the Health Quality Improvement Partnership on behalf of NHS England and is led by Bristol University.
The LeDeR programme was established as a result of one of the key recommendations of the Confidential Inquiry into Premature Deaths of People with a Learning Disability (CIPOLD – 2003).
The programme aims to help health and social care professionals and policy makers to:
- Identify the potentially avoidable contributory factors related to deaths of people with learning disabilities
- Identify variation and best practice in preventing premature mortality of people with learning disabilities and
- Develop action plans to make any necessary changes to health and social care service delivery for people with learning disabilities.
The programme will collate and share anonymised information so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements.
Since 1 October 2017 the deaths of people (aged four and above) with a learning disability, who were registered with a Birmingham GP, are reviewed.
To report a death of a person with a learning disability to the National Mortality Review team, you can use a confidential online notification form or call 0300 777 4774 (Monday to Friday, 9am to 4.30pm). You do not need anyone else’s permission to report the death. Anyone can report a death of a person with a learning disability, including family members, friends, local authority and NHS staff.
Further information on the programme:
- University of Bristol (LeDeR)
- University of Bristol easy read leaflet
- Notify a death information poster
Stopping the overmedication of people with a learning disability (STOMP)
NHS England has found that many people with learning disabilities are sometimes inappropriately prescribed medication for behaviours seen as challenging. For many people the medication does not work and can lead to serious side-effects such as sedation, weight gain and difficulty moving. We need to change this situation and review the use of medication if it is not working. Find out more by reading this leaflet.
Useful STOMP Information:
- Information on STOMP Programme
- Bury CCG Medicine Optimisation Team work on STOMP
- Key Therapeutic Topics NICE on STOMP
- The benefits of Stopping Andrew’s psychotropic medication
- Getting Jo’s medication right - a parent’s story and the positive impact of STOMP
- Jack’s story about how STOMP helps children and young people
- Preparing to visit a doctor to talk about psychotropic medication - resource for support worker who is accompanying a person with a learning disability, autism or both to a GP consultation appointment to talk about psychotropic medication
- Transforming Care Partnership work on enhancing care treatment reviews (CTRs) to have an extra focus on medicines, physical health and making information accessible.