Transforming care for people with learning disabilities is a national programme to improve services for people with learning disabilities and/or autism, who display behaviour that challenges, including those with a mental health condition. This will drive system-wide change and enable more people to live in the community, with the right support, and close to home.
Led jointly by NHS England, the Association of Adult Social Services (ADASS), the Care Quality Commission (CQC), Local Government Association (LGA), Health Education England (HEE) and the Department of Health (DH), the Transforming Care programme focuses on the five key areas of:
- Empowering individuals
- Right care, right place
The national plan, Building the Right Support, that has been developed jointly by NHS England, the LGA and ADASS, is the next key milestone in the cross-system Transforming Care programme, and includes 48 Transforming Care Partnerships across England to re-shape local services, to meet individual’s needs. This is supported by a new Service Model for commissioners across health and care that defines what good services should look like.
The plan builds on other transforming care work to strengthen individuals’ rights; roll out care and treatment reviews across England, to reduce unnecessary hospital admissions and lengthy hospital stays; and test a new competency framework for staff, to ensure we have the right skills in the right place.
The Transforming Care programme is focusing on addressing long-standing issues to ensure sustainable change that will see:
- More choice for people and their families, and more say in their care
- Providing more care in the community, with personalised support provided by multi-disciplinary health and care teams
- More innovative services to give people a range of care options, with personal budgets, so that care meets individuals’ needs
- Providing early more intensive support for those who need it, so that people can stay in the community, close to home
- But for those that do need in-patient care, ensuring it is only for as long as they need it.
More information on Transforming Care is available below:
- Building the right support leaflet
- Building the right support plan
- Transforming Care Plan - easy read
- Transforming Care Board terms of reference - easy read
- Birmingham Transformation Plan
Care and Treatment Reviews
Care and Treatment Reviews (CTR) have been developed as part of NHS England’s commitment to transforming the services for people with learning disabilities and/or autism who display behaviour that challenges, including those with a mental health condition.
The CTR ensures that individuals get the right care, in the right place that meets their needs, and they are involved in any decisions about their care.
The policy for Care and Treatment Reviews, also called CTRs, changed in March 2017. View the latest policy.
In order to promote awareness of Transforming Care and to support best practice within CTR, we have produced a document that contains useful links and resources for professionals, patients and families. View the Transforming Care and Care Treatment Reviews document and the Modified 12 step discharge checklist.
To find out more visit the NHS England website.
Learning Disability Mortality Review Programme (LeDeR)
People with learning disabilities die on average 23 to 27 years earlier than the wider population. The LeDeR programme looks at what could be the reasons behind this health inequality, and identifies how we can deliver improvements in the quality of health and social care of people with learning disabilities.
The LeDeR programme is commissioned by NHS England, coordinated by Bristol University, and delivered locally. Every death of a person with a learning disability is individually reviewed as part of the programme. The findings are then collated into national and local reports to identify key themes and learning points.
In each case the reviewer will look at the health needs of the individual and the care they were getting, as well as whether annual health checks were being carried out, the right services were being accessed, medication was being reviewed, and reasonable adjustments were being made.
In Birmingham and Solihull our local reviewers are sourced from a wide range of partner agencies who are supporting the CCG in delivery of the programme.
You can learn more about the national findings by downloading a copy of the report produced by Bristol University.
Anyone can notify the LeDeR programme of the death of a person with a learning disability. You do not need anyone’s permission to report the death. More details can be found here.
A film of the 2019 Birmingham and Solihull LeDeR annual report is available to watch below:
An easy read version of the 2019 Birmingham and Solihull LeDeR annual report can be found here.
Further information on the programme: